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Oggi torno con aggiornamento della crescita dei capelli dopo due mesi con bevanda di lievito. Questo mese sono cresciuti 3 cm! Quindi in totale 5cm! Cabot Ar Drivers License Testing more.

Le punte sono ancora in uno stato pietoso.ma tra 3 settimane finisco di bere il lievito e corro subito da parrucchiere per dargli una sistemata! Non vedo l'ora:)  Hej! Dzisiaj przychodze do was z fotkami pokazujacymi wzrost moich wlosow po dwoch miesiacach picia drozdzy. W tym miesiacu urosly az 3 cm! Wiec lacznie 5 cm!

Koncowki sa jeszcze w tragicznym stanie, przesuszone i lamiace sie.ale za 3 tygodnie koncze kuracje drozdzowa i lece do fryzjera by je sciac. Juz nie moge sie doczekac!:). Today is The World Rare Disease Day. Only in Europe, there is about 30.000.000 people suffering from rare diseases. Even 7000 diseases are diagnosed and 95% of them are not treated. 75% of the diseases touch children.

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What is the goal of this day? The aim of it is to sensitize us, healthy people, on existence of the rare diseases, not popular ones, which are often led in a wrong way.

They should be led better – to save lives or at least to improve its quality. This-year motto “ Rare Diseases With No Limit” shows that if any matter has its cultural, mental or racial boundary, if we mean rare diseases – there is no boundary at all. In my opinion, not many people try to understand world and reality of sick people suffering from the rare diseases. Sometimes it happens because the disease doesn’t touch us and we and our family are healthy; sometimes, because we don’t have time to think about other people's problems– we have many of our own ones. Sometimes, it is because of fear to confront with such problem – and here I must confess that I was afraid of it, too. However, like it often happens, the situation lasts until the problem touches you – as it was in my case – when in my family appeared a little person affected by a rare disease.

Martusia’s history you can read here - it is a diary written by her mum Anna and her dad Wojtek. Marta was born 5th of October 2011.

She suffers from a rare genetic disease – Apert Syndrome causing premature coalescence of cranial sutures and adhesion of fingers and toes and many others defects. It is hard to find appropriate words to say what sick people and their families feel. Let’s just try to understand. Let’s be more sensitive, let’s try not to turn our heads away, let’s notice the sick people. For more information about the whole campaign and about organized events see on.